PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Cheryl and Keith

Cheryl and Keith Rear's Friends

Cheryl and Keith Rear's Groups

Cheryl and Keith Rear's discussions

Anyone in the uk!

Added a reply Apr 13

Anyone in the uk!

Added a reply Apr 11

Anyone in the uk!

Added a post Apr 1

 

Latest Activity

Blanca left a comment for Cheryl and Keith Rear 10 hours ago
Cheryl and Keith Rear and Blanca are now friends
Cheryl and Keith Rear Blanca
10 hours ago
Blanca left a comment for Cheryl and Keith Rear Jun 26
Cheryl and Keith Rear replied to the discussion Anyone in the uk! Apr 13
Cheryl and Keith Rear replied to the discussion Anyone in the uk! Apr 11
Kate left a comment for Cheryl and Keith Rear Apr 3
Gretchen left a comment for Cheryl and Keith Rear Apr 1
Gretchen left a comment for Cheryl and Keith Rear Apr 1

Profile

What is your child's name?
Savannah Georgia Eve
How old is he or she?
18 months
At what age was your child diagnosed with PKS?
May 7, 2007
How long ago was the diagnosis?
10 months

Comment Wall (12 comments)

You need to be a member of PKS KIDS to add comments!

Join this network

At 9:38am on July 5th, 2008, Blanca said…
Hi Cheryl, sorry to hear about Savannah...i hope she gets better soon. Alex is our 3rd child; our oldest daughter is 17 and then my middle child(daughter) is 12. 16 years is a very big gap :) we did not intend to have any more after our second one but God decided otherwise and he is one of our biggest blessings.
At 4:04pm on June 26th, 2008, Blanca said…
Hi Cheryl, my name is Blanca - mommy to Alexander (12 months). I received the post in the Yahoo group digest about Savannah saying Da-Da...that is great! Alex always pays close attention when we are sounding out the da-da, ma-ma, wa-wa, and will sometimes move his mouth but nothing (yet :) ) Is this her very first word?
At 12:58pm on April 11th, 2008, Cheryl and Keith Rear said…
Hello everyone.
Unfortunatly going to Great Ormond St. was a waste of time. The hospital that Savannah attends in our city hadn't forwarded any info on her. Sleep studies, PSG's etc. So nothing to report. i know disappointing. Going to see him in 6 months, hopefully he will have all he needs on Savannah.

Cheryl .,x
At 2:38pm on April 3rd, 2008, Kate said…
Cheryl- That's great you are able to see a PKS "specialist." I was beginning to think Dr Pallister himself was the only PKS specialist out there! Looking forward to hearing how everything went.
Kate
At 5:30pm on April 1st, 2008, Gretchen said…
What? There is a PKS specialist? Who Where How??? Please tell all of us the details!!

Simon is great today, like a new litle boy--or rather back to the boy I once had. Wow! First tooth. Simon teethed on time--got his first at 8-9 months. I hope she didn't have too much trouble with it.
At 5:25pm on April 1st, 2008, Cheryl and Keith Rear said…
I'm going to download some recent pictures shortly..so watch ths space!
We are going to Great Ormond Street, London on Thursday to see a PKS specialist....i know i nearly fell off my chair!!! didn't know there was such a person!! will let you know how we get on.
How is Simon today? Savannah is good,her first tooth is finally through..yippee!!!
At 5:18pm on April 1st, 2008, Gretchen said…
Oh, this is such a cute pic of Savannah. I'm not sure I've ever seen her before!
At 5:24pm on March 31st, 2008, Gretchen said…
:) LOL, Savannah Georgia! :) Are you American?
At 5:10pm on March 29th, 2008, Gretchen said…
What? Why the "American" name when you live in the UK?
At 5:07pm on March 29th, 2008, Gretchen said…
Yay! Love seeing that familiar picture here! :) Writing to you on Facebook next!!

View All Comments

 
 

About PKS KIDS

the zanes the zanes created this social network on Ning.

Create your own social network!

 

© 2008   Created by the zanes on Ning.   Create your own social network

Report an Issue  |  Feedback  |  Privacy  |  Terms of Service