PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Barclay family's Page

Barclay family's Friends

Barclay family's discussions

Teething

Added a post Jun 18

hearing

Added a post Jun 11

 

Latest Activity

Barclay family and The Woods are now friends Jun 26
Barclay family commented on the photo Maddy, Natalie and Simon Jun 25
Barclay family commented on the photo or Chillaxin as Maddy would say Jun 25
Quist Family and Barclay family commented on the photo My guy Jun 25
Barclay family commented on the photo The board's boys! Jun 25
Barclay family replied to the discussion Recent posting on Medlinx about PKS Jun 25
Blanca left a comment for Barclay family Jun 23
Susan left a comment for Barclay family Jun 22

Profile

What is your child's name?
Alexa
How old is he or she?
3
At what age was your child diagnosed with PKS?
December 18, 2006
How long ago was the diagnosis?
She was 18 months old

Barclay family's Photos

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Comment Wall (9 comments)

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At 9:37am on June 23rd, 2008, Blanca said…
Hi Michelle, that's funny 'love tug' at sister's hair because my youngest one gets the same lovin from Alex :)
for whatever reason her hair is the only person's hair he loves to grab on to..
At 10:11pm on June 21st, 2008, Susan said…
We have had a great time. We wish we could have spent more time with each of the families and heard about all of the children. Brian has loved his trip and will want to come again, I'm sure. Those of you with young children have many challenges before you but I hope meeting Brian has been helpful.
At 8:54pm on June 20th, 2008, Mary Goya said…
Thank you for the message of support. I am sure we will have lots of questions in the near future.
At 4:33pm on June 19th, 2008, Blanca said…
Thank you for the Welcome :) i look forward to sharing; Alexa is so cute:) I see that she has two older sisters too...?... (like Alex)...i'm sure they are great w/ her. My two daughters love on Alex so much and he just absorbs it all in. He likes to listen to music w/ my oldest daughter and enjoys all the kisses my youngest daughter provides on a daily basis :)---even if it means wearing the glitter she leaves behind from her eyeshadow---it's so cute.
At 3:02pm on June 12th, 2008, ANDREW GRUNCELL said…
i agree just a little smile has such a huge impact on your day.
At 8:41pm on April 17th, 2008, Bec Paton said…
Thanks! I see a lot of Sarah in Alexa in your photos.
Sarah was diagnosed in Sept 06 - not long before Alexa.
At 3:25pm on April 17th, 2008, Christine said…
I saw the pics and thought they were Simon also...LOL
At 12:09pm on April 10th, 2008, Gretchen said…
Hi Alexa and family!! So glad you're here. Welcome and feel free to share and ask questions!

Gretchen
At 11:20am on April 10th, 2008, the zanes said…
Hi Barclay Family,
Welcome to the site. Alexa is very adorable by the way!!!!!!
 
 

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