PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Maleka Brown's Page

Maleka Brown's Friends

Maleka Brown's Groups

Maleka Brown's discussions

Seizures

Added a post Jan 6

 

Latest Activity

Maleka Brown joined the group UK Families Apr 2
rob & annette Millington left a comment for Maleka Brown Jan 6
Jeannette D. Wade left a comment for Maleka Brown Jan 6
Maleka Brown replied to the discussion Seizures Jan 6
Maleka Brown left a comment for Christine Granahan Jan 2
Christine Granahan left a comment for Maleka Brown Jan 2
Maleka Brown added 8 photos. View Photos
Malcolm sleep after long day of school Malcolm laying down n his room Malcolm waiting 4 the school bus Malcolm sleep b4 school
Dec. 29, 2007
Gretchen left a comment for Maleka Brown Dec. 21, 2007

Profile

What is your child's name?
Malcolm Brown
How old is he or she?
11
At what age was your child diagnosed with PKS?
March 6, 1998
How long ago was the diagnosis?
11 years old

Maleka Brown's Photos

Loading…

Comment Wall (8 comments)

You need to be a member of PKS KIDS to add comments!

Join this network

At 5:21am on January 6th, 2008, rob & annette Millington said…
Hi Maleka , nice to speak to you , our son Michael is just 13 and fast becoming quite a young man. We have tried various medications to control his sleep pattern , none of which worked , so he just sleeps when he wants to and is awake likewise.
At 11:20pm on January 5th, 2008, Jeannette D. Wade said…
Hi, welcome! I have a granddaughter Kelsey, who is four and was diagnoised with PKS I believe two years ago. We love her so very much her grandpa and I!! She is such a joy to us and we thank GOD everday for giving her to us. I think that this is the best thing the internet has produced to help one another. Jeannette Wade
At 9:45pm on January 1st, 2008, Christine Granahan said…
Hi Maleka,
Welcome! It will be great to share info with you. Mckenna sleeps fairly well at night, she has a tough time falling asleep though. She "talk" and plays with her crib friends and finally falls asleep.
At 2:30pm on December 31st, 2007, Maleka Brown said…
Hi Everyone!!! I hope yall Christmas and New Year went wonderful. Malcolm just start taking Clonidine Tab 0.1 mg. He take 2 pill at brdtime so he can sleep all night. But its not work at all. He still be up all night and sleep all day. Is any of yall kids on sleeping pill so the can go to sleep??
At 5:27pm on December 21st, 2007, Maleka Brown said…
Hi Gretchen
Thanky You!!!! Malcolm doing very good. How is Simon??? I will tell her that you saied hi.. Merry Christmas and a Happy New Year!!!!!!!!!!!!!!!!!
At 6:47am on December 21st, 2007, Gretchen said…
Hi Maleka! I'm so glad you're here! How is Malcolm? You're an amazing sister--I hope my kids are as good with Simon when he needs it. Kisses to him and Merry Christmas! Tell your mom hi!
At 8:33pm on December 20th, 2007, Maleka Brown said…
Thank You!! I have founf this web site and the yahoo web site very helpful. They understand what we go through. Im out of town right now, but when i go back home go to put some pic of Malcol on hear and the yahoo one.


Maleka
At 6:57pm on December 20th, 2007, Luis and Spesh said…
Welcome to the group. I ahve found it to be very very helpful. we are all here for conversation or whatever else you need. I joined 3 weeks ago and it has been a life saver to have these kind people who know what im going through there for me

Kindest regards,

Speshelle
 
 

About PKS KIDS

the zanes the zanes created this social network on Ning.

Create your own social network!

 

© 2008   Created by the zanes on Ning.   Create your own social network

Report an Issue  |  Feedback  |  Privacy  |  Terms of Service