A Forum For Those Touched By Pallister-Killian Syndrome
Cammie Gray's Page
Cammie Gray's discussions
sleep and behavior
Added a reply 8 hours ago
sleep and behavior
Added a reply Jul 3
Your Child???
Added a post Jun 30
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- What is your child's name?
- Kelsey
- How old is he or she?
- 4 years old
- How long ago was the diagnosis?
- year and a half ago
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Kennedy wakes sometimes fussing but its soo hard to tell. she is soo little ya know. When she is up and does her little shake thingy is when she laughs. but its such a hit or miss. I guess we will have to wait it out and see because she has had her share of eeg and is still on meds. thanks again
can u explain what these night time seizures or episodes look like? Kenny has had 4 eeg 1 24hr and detected no seizures..when she is sleep at night she wakes making this noise and we pat her and she goes back to sleep..its like she is telling someone off and arches her body further ( which she likes to sleeep arched lol)..also what about the startles.some time she straightens her whole body and goes " ooh ooh or ha ha" but the thing is she starts smiling or laughing..so im soo confused no doctors offer any answers..especially because she laughs..she has been on phenobarbital since birth but we have not uped her dose because we have no proven seizures...i dunno :-/???? Delete Comment
Sally
Here in the US they put baby food in 3 stages. From what i call runny food to food with chunks. She has issues with texture items and i think that is the problem with the table food. I am not able to get the food blended to her liking. Her therapist are helping with this issue and maybe in a couple of months we will be past this issue. Do you have any other children?
cammie and Kelsey
i'm glad to meed you and kelsey here .
i'hope that she has a good birthday party last weak.
what do you mean whit nr 3 baby food .
is nr 3 months or something else .
fleur is eating every thing that i put in a blender .
even she eat some bread but not every day only when she will eat .and not being tired.
do you think that kelsey regenice some food that she likes .
greatings from monique and fleur
Love Kate and Luke