PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

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hearing

Added a reply Jun 9

hearing

Added a reply May 29

hearing

Added a post May 29

 

Latest Activity

Christine commented on the blog post Official Confirmation Jun 10
Luis and Spesh left a comment for Christine Jun 9
Christine replied to the discussion hearing Jun 9
Christine replied to the discussion hearing May 29
Christine replied to the discussion hearing May 29
Christine replied to the discussion Fontanelles/Soft Spots May 29
Christine added 2 photos. View Photos
airyn standing 5-17-08 airyn and bob
May 23
Christine left a comment for Camilla/Lauren May 20

Profile

What is your child's name?
Airyn
How old is he or she?
2 years old
How long ago was the diagnosis?
September 2006

Christine's Photos

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Christine's Blog

Her cousin

Over this past weekend we visited Grandma and Grandpa and got to see Airyn's cousin who is 3 months younger than her. It was a bit disappointing to see her normal development and then compare her to where Airyn is. I know I will always be dealing with it. But on the other hand..I think it may also motivate her in the future. We won't see her cousin much but maybe those short visits will encourage Airyn. I will have to post some pics as soon as Grandma emails them to me..LOL Christine

Posted on May 20th, 2008 at 2:21pm — 4 Comments (Add)

Updates

We have been seeing dramatic and quick changes in Airyn these last couple weeks. She can now push herself to a sitting position from her belly!! The other morning I went in to get her out of her crib and she was sitting up in there! She's also making more sounds like baba, dada, mama,...and other sounds. She's really surprising us and herself these last few weeks. We are trying to work on getting her to crawl now that she is more mobile on her own. She had her 2nd bday last week. We still have… Continue

Posted on April 16th, 2008 at 4:28pm — 2 Comments (Add)

Comment Wall (6 comments)

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At 4:53pm on June 9th, 2008, Luis and Spesh said…
things have been really good..Kennedy is doing well. We are still working on better head control and pushing up. crazy thing is she has ok head control but hates pushing up. When we sit her up and hold her hands she does pretty pk with managing her head. Did airyn do this?..Kenny is just lazy sometimes. Like if i sit her up she arches and curses us in baby talk...did you go through this with airyn?which did she do first? push up or head control?
At 3:03pm on April 17th, 2008, ANDREW GRUNCELL said…
Hi christine,my name is andy father to santiago.thanks for the friend request.you can never have enough friends especially when when we have such a rare thing in common. Santi is nearly 7 months old.He was diagnosed in january . He has spent the last 13 weeks in hospital which is an hours drive from us.Today we were told he would be coming home on monday so we are sooooo excited.So how have you found thing with Airyn? At what age was she diagnosed?
At 1:22pm on April 17th, 2008, Luis and Spesh said…
Thanks Christine,

Things have calmed down. we are in the swing of things now. Kennedy is the Boss of the house. she has began vocalizing a lot lately. I think she is cursing us out. but hey as long as she is vocalizing..take care
At 8:15am on April 3rd, 2008, Christine Granahan said…
Wow, Airyn and Mckenna have VERY similar hair! It is tough for me with my wimpy straight hair, to even know what to do with her mound of curls that grow out not down....
Airyn is so cute. I like this site since you can easily add video and pics.I will invite you to be my friend.
Chris
At 12:54pm on January 17th, 2008, Christine said…
Thank you for the welcome. I am going to have to get busy with Airyn's page. I was mainly using the Yahoo Group, but this site will be a great place to share stories also!! I will get to work on updating her page soon.
At 5:07pm on January 15th, 2008, Gretchen said…
Hi Christine and Airyn! WELCOME! So glad to see you here!

Gretchen
 
 

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