PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

The zanes's Page

The zanes's Friends

the zanes's discussions

Fontanelles/Soft Spots

Added a post Jun 2

seizures

Added a reply May 18

seizures

Added a reply May 15

 

Latest Activity

the zanes left a comment for Quist Family Jun 27
Quist Family left a comment for the zanes Jun 25
the zanes and The Woods are now friends
the zanes The Woods
Jun 23
the zanes left a comment for Jenny Jun 11
the zanes replied to the discussion Fontanelles/Soft Spots Jun 2
the zanes replied to the discussion seizures May 18
the zanes replied to the discussion seizures May 15
the zanes replied to the discussion seizures May 14

Profile

What is your child's name?
Jake
How old is he or she?
4
How long ago was the diagnosis?
3 1/2 Years

the zanes's Photos

Loading…

the zanes's Videos

Comment Wall (18 comments)

You need to be a member of PKS KIDS to add comments!

Join this network

At 8:50am on June 26th, 2008, the zanes said…
It was great seeing you guys too. Todd looks so strong! The highlight for us, among many, was just kicking back on Friday night with all of you and simply talking, sharing stories, having fun. We hope to see you guys more often and at least at every event!!!

All our love,
The Zanes
At 4:07pm on June 25th, 2008, Quist Family said…
Love seeing Jake with his sibs...it was wonderful to see you all,,
Todd loves his new blankie - thank you so much!!

The Quist's
At 9:33pm on April 11th, 2008, Camille Jung said…
Hi guys , just fooling around thought we'd say Hello! Miss you and hope Jake and the twins are well. Hope to see you all soon. Haley misses her boyfriend!
At 12:08pm on April 10th, 2008, Barclay family said…
Thank you for the welcome. We hope all is well with Jake and with the whole family.
At 11:31am on April 10th, 2008, Crystal said…
Thank you very much for the welcome
At 1:51pm on April 2nd, 2008, Jakub Kodziewski said…
Thanks for the warm welcome. Ania is a daughter of my sister but I'm trying to find as many information for her as possible and I think this website is great and I'll be able to find here lots of firends and help!
I'm from Poland. Ania was diagnosed 2 days ago so for us it's just a begining. Hope to here more from all of you guys.
Thank you again,
Jakub
At 4:06pm on March 31st, 2008, ANDREW GRUNCELL said…
Thanks for the welcome , I am father to Santiago who is 6 months.He was diagnosed at 2 months . I found information hard to come by but PKS kids has helped me to start recognising that there are other children out there like my little Santi and that we are not alone.I am already starting to find that talking to parents like yourselves is invaluable . Your son Jake looks like an older version of santi.
He looks a very happy little boy .
Andy
At 6:38pm on February 3rd, 2008, Jeannette D. Wade said…
I need to put better pictures on here of Kelsey. I look at all these pictures of the pks children and they are so special and beautiful!! We have a granddaughter named Kelsey and we love her with all our hearts! All I can say is hang in there and pray and believe... Jeannette
At 2:42pm on December 2nd, 2007, Luis and Spesh said…
Thank you..I will put some pics up of Kennedy soon. Im just so tired from waking up pumping every 3 hours and going back and forth to the NICU. But it is all worth it she is being feed thru a feeding tube and is now up to an ounce.the Pressure is on lol. She has improved so much and she is only a week old. going from 100%b oxygen to no help at all..She is such a little blessing..tke care..Blessings to your family.
At 11:16am on November 20th, 2007, Erica Gambetta said…
how is zane this week??

View All Comments

 
 

About PKS KIDS

the zanes the zanes created this social network on Ning.

Create your own social network!

 

© 2008   Created by the zanes on Ning.   Create your own social network

Report an Issue  |  Feedback  |  Privacy  |  Terms of Service