A Forum For Those Touched By Pallister-Killian Syndrome
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Vania Vincer
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- United Kingdom
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where do we send the completed questionnaires to please?
Hi Sylvie - we saw her the 20th too. Great cause x
Travel insurance in the UK covers us for loss of valuables and luggage, trip cancellation, health care in the destinations planned to travel to. We are taking Santi to Florida back end of June :0)
Do you mean so that insurance pays for your trip?
Has anyone managed to get travel insurnace to go to the US covering PKS? If so please can you let me have details. We would like to take Santi.
Thanks
Vania
This group is for those who live in the UK for discussion of services, education, etc applicable to them.
Hola soy la madre de Santi. Hablo ingles y espanol, pero mejor ingles ahora que estoy aqui tantos anos!! Me encanta este grupo ;0)
Profile Information
- What is your child's name?
- Santi
- How old is he or she?
- 16 months
- At what age was your child diagnosed with PKS?
- January 2, 2008
- How long ago was the diagnosis?
- 1 year and 3 months ago
Vania Vincer's Photos
Comment Wall (17 comments)
- At 10:04am on November 13, 2009,
Kelsey/ cammie said…
- Hello Vania
My name is Cammie Gray I am a parent of a PKS Kid and a board member. Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com
Everything will be keep confidential
- At 5:28am on October 12, 2009,
Sally-Anne Wilkinson said…
- I can't believe Santi is two years old! Where does the time fly? Glad to hear that he's doing well :) How was the meeting with the other parents? Are they coping well with the diagnosis - it's a shock when you first find out and learn about the condition.
Things are fine with us - we're still struggling with Lucy's tummy pains, but she is doing okay in every other way. School is becoming quite hard for her now as she's started in year three, but we're just trying to jolly her along, when all she wants to do is stay at home! (Know how she feels!!!)
Take care and hopefully speak soon xxx
- At 5:17pm on October 11, 2009,
Sally-Anne Wilkinson said…
- Hey Vania, how's everything going with Santi??? Hope he's well, and hope everything is okay with you and Andrew too xxx
- At 6:48am on August 3, 2009,
Sally-Anne Wilkinson said…
- Hi Vania, was lovely to meet you and Andrew on Saturday. You are both doing a wonderful job with Santi, and he's a gorgeous little boy.
- At 4:55pm on August 2, 2009,
tracy ayres said…
- im really glad you all enjoyed it. xxx
- At 9:56am on August 2, 2009,
tracy ayres said…
- hi vania it was lovely to meet you all yesterday,i just feel a bit guilty that i didnt get to speak to you much.hope you didnt think i was being rude !!!! xxxxxx
- At 1:14pm on April 2, 2009,
elaine and conor :) said… - hi i love all the pictures there soooooo cute!!!
- At 5:29pm on April 1, 2009,
Gretchen & Simon said…
- Love all the photos--hope Santi is doing well! :)
- At 9:30am on March 30, 2009,
Dina Manosalva Reyes said… - Vania, que bueno es encontrar gente como tu que hablamos el mismo idioma, te confieso que me cuesta mucho entender y escribir en inglés, bueno y más aún saber que eres Chilena, espero tener más contacto contigo y saber más de tu pequeño
- At 5:42am on March 6, 2009,
tracy ayres said…
- hello vania glad you are coming to the reunion if you have any questions ill be happy to help.xx
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