A Forum For Those Touched By Pallister-Killian Syndrome
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Tyra Skibington
- Female
- Kelowna,BC
- Canada
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she is soo cute!
what a cute bunny:)
Darby, you make the sweetest bunny!
We have been using this for a while too! Darby loves her protein smoothies- we mix all fruits, yogurt,protein powder, omega liquids, CalMag liquid, water and some Benefiber! Hoorah for daily poops!
If you are Canadian please join. We would love to know how many Canadians there are out there living with PKS.
Darby looks sooo cute!!..such a big girl enjoying her stander!
wow she seems to love standing in the frame , and looks really comfortable, conor has a standing frame and he hates it ! he goes mad when i put him in it, he is in a straight postion not tilted, he has started to bear weight on his legs , cant sit...
She seems to really enjoy this! I always felt that Mckenna "woke up" from a gross motor stand point, once I put her in standing position. It was like she saw the world and wanted to tackle it. Looks like Darby has that same look in her eyes-look o...
thanks Tyra, i'm defintely going to ask the therapists about this.
Anthony's PT is trying to get one of these for him. Thanks for adding the picture. I was wondering what it looked like.
Seems like she likes it!!
No Darby doesn't do any major movements other than 1/2 rolling. We have had the stander for a year or so. They said it was essential for her joints. It is work getting her into it (straps,etc) but we keep her in for an hour now. It wheels around t...
Profile Information
- What is your child's name?
- Darby
- How old is he or she?
- 2.5
- At what age was your child diagnosed with PKS?
- June 15, 2007
- How long ago was the diagnosis?
- 2 years
Tyra Skibington's Photos
Comment Wall (5 comments)
- At 9:39am on November 13, 2009,
Kelsey/ cammie said…
- Hello Tyra
My name is Cammie Gray I am a parent of a PKS Kid and a board member. Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com
Everything will be keep confidential
- At 1:04pm on July 22, 2009,
Anna Randell said…
- Hi Tyra, I hope all is well with you in Kelowna and that the smoke isn't to hard for Darby and of course that you don't live in West K. Morgan still talks about our day at Calaway Park. Talk to you soon.
- At 9:12pm on June 26, 2009,
Barclay family said…
- Happy that you and Darby found up Tyra. Welcome! We've got a Canadians group here as well if you would like to join us.
- At 1:44pm on June 12, 2009,
Tom Amber and Shelby said… - WELCOME!!! Glad to have another PKS sister of Shelbys here to chat with!! Cant wait to see more Picuters of Darby!
- At 2:46pm on June 11, 2009,
Gretchen & Simon said…
- Hi Tyra! So glad you and Darby are here :) She's a gorgeous princess in her picture!
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