A Forum For Those Touched By Pallister-Killian Syndrome
-
Sona
- Richmond
- United Kingdom
- Share
- Blog Posts
- Discussions
- Events
- Groups (1)
- Photos (4)
- Photo Albums (1)
- Videos
Sona's Page
Gifts Received
Sona has not received any gifts yet
Profile Information
- What is your child's name?
- Rudi Ketan Nash
- How old is he or she?
- 4 years
- How long ago was the diagnosis?
- Diagnosed when he was 18 months old
Sona's Photos
Comment Wall (11 comments)
- At 10:07am on November 13, 2009,
Kelsey/ cammie said… - Hello Sona
My name is Cammie Gray I am a parent of a PKS Kid and a board member. Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com
Everything will be keep confidential
- At 6:45am on August 3, 2009,
Sally-Anne Wilkinson said… - Sona, was lovely to meet you, your husband and your two wonderful boys. Rudi is an absolute treasure, and it was beautiful to see him running around and interacting with everyone. Can't wait to hear how he gets on when he starts school in September - it was the making of Lucy :)
- At 4:12pm on July 26, 2009,
tracy ayres said… - hi sona yes thats right.am looking forward to meeting you all too.hopefully we dont need the brollys!!!!!
- At 4:59pm on March 14, 2009,
tracy ayres said…
- hi sona have you signed up for the uk family get together yet? if you have any questions about it let me know xxxx
- At 5:08pm on January 12, 2009,
Alexander (Mommy=Blanca) said… - Thank you :) It is wonderful to hear all that Rudi is doing---that is so Great---especially the part about fighting over toys (priceless, all little brothers should fight over toys :) ) Thank you for sharing all of his progress.... We too hope to one day (not too far from now) see Alex causing havoc in his sisters' room. They adore him so and he loves them too but can only take so many smooches. i look forward to seeing more of Rudi's pictures---i love the profile picture.
- At 12:24pm on January 12, 2009,
Alexander (Mommy=Blanca) said…
- Hi Sona; would love to hear more about Rudi and what he is doing at his wonderful age of almost 4 years :) I'm Mom to Alex 'my handome' (18 months old), and two wonderful older daughters 17 yoa and 13 yoa.
- At 3:06pm on January 6, 2009,
elaine and conor :) said… - hi i love your profile picture its gorgeous. hows rudi doing?
- At 3:01pm on January 6, 2009,
tracy ayres said…
- welcome to the group sona and rudi.i know richmond well i used to live in roehampton near putney but now live in suffolk.xx
- At 1:42pm on January 6, 2009,
Luis, Speshelle, Kennedy and Zoe said… - Welcome!!!!
- At 12:41pm on January 6, 2009,
Gretchen & Simon said… - Sona--I just read your guestbook entry on PKS Kids--whom have you met? There are so many UK families on here---I really want to get all of you going on a meeting this summer. Here we call them PKS Kids Family Reunion and we do it every other year. Let me know if you are interested in helping with this!
© 2009 Created by the zanes on Ning. Create a Ning Network!
