A Forum For Those Touched By Pallister-Killian Syndrome
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Nic, Terzita, Adam & Alessia Acquarola
- 2, Female
- Perth, Western Australia
- Australia
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- Blog Posts (3)
- Discussions (80)
- Events
- Groups (1)
- Photos (30)
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Nic, Terzita, Adam & Alessia Acquarola's Discussions
Swine Flu shot
Replied Oct 7
Alessia (Our Princess)
Gifts Received
Nic, Terzita, Adam & Alessia Acquarola has not received any gifts yet
Latest Activity
Thats not bad ! only about 125 books remaining ....... and if we had them we would have sold them as well - the response here has been overwhelming to say the least. And to tell you the truth we did not even try "that" hard. Come one guys sell the...
Hi Sally, I just had a look at the site - it's great, well done and congratulations. Thank you also for allowing others to gain an insight into PKS. I'd love to see the whole documentary, how can we here in Australia get to see it? Hugs, Terzita (...
happy bday gretchen
Ooops, got a bit carried away didn't I. (I actually made you one day yonger)
Anyway I did a little researching and you share the day with some famous people/events:
1940 John Lennon (singer, musician - The Beatles)
1944 John Entwistle (musician ...
Profile Information
- What is your child's name?
- Alessia
- How old is he or she?
- 2 years old
- At what age was your child diagnosed with PKS?
- August 1, 2008
- How long ago was the diagnosis?
- August 2008 (18 months)
Nic, Terzita, Adam & Alessia Acquarola's Photos
Nic, Terzita, Adam & Alessia Acquarola's Blog
News about Gretchen !!!
Hi all,
Sorry to do this to you all, but I have on very good authority that October 10 is a very special day for a special (young) lady.
HAPPY BIRTHDAY GRETCHEN !!!
Hope you have an enjoyable day.
LOVE FROM THE ACQUAROLA CLAN (IN PERTH, WESTERN AUSTRALIA)
XXX OOO XXX
(sorry about the tags)
Sorry to do this to you all, but I have on very good authority that October 10 is a very special day for a special (young) lady.
HAPPY BIRTHDAY GRETCHEN !!!
Hope you have an enjoyable day.
LOVE FROM THE ACQUAROLA CLAN (IN PERTH, WESTERN AUSTRALIA)
XXX OOO XXX
(sorry about the tags)
Posted on October 9, 2009 at 10:36am — 4 Comments
We met Sarah!!!
Hi Everyone! Finally, I get the chance to sit and tell you about meeting Sarah, as Bec has already alluded. Nic and I managed to get away for a week which was great. We, or should I say, I decided that we'd go to Melbourne - a place that I'd visited many times before, but this visit was going to be a little different. We arrived Sunday (Sept 6) and were due to leave the following Saturday (Sept 12), but not without visiting Ballarat to meet a very special little girl "Miss Sarah Paton". I was a… Continue
Posted on September 18, 2009 at 1:30am — 1 Comment
BIG SPLEEN VENT!
AAARRRGGGGHHHHHH ................................
and more AAARRRRGGGGGHHHHHHH.
And some SSSSSHHHHH... (finish the word)
Not a PKS subject but there is a moral to this story:
This time last week I was working on the computer and it crashed. I did everything possible to try to resurrect it but to no avail. So on Monday I dropped it off to a computer store and Friday night I got it back. The entire C:\ (C: drive) was wiped and lost everything, yep everything. Well not that bad because luck… Continue
and more AAARRRRGGGGGHHHHHHH.
And some SSSSSHHHHH... (finish the word)
Not a PKS subject but there is a moral to this story:
This time last week I was working on the computer and it crashed. I did everything possible to try to resurrect it but to no avail. So on Monday I dropped it off to a computer store and Friday night I got it back. The entire C:\ (C: drive) was wiped and lost everything, yep everything. Well not that bad because luck… Continue
Posted on July 17, 2009 at 1:02pm — 4 Comments
Comment Wall (48 comments)
- At 10:54am on November 13, 2009,
Kelsey/ cammie said…
- Hello Nic
Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com
Everything will be keep confidential
- At 7:56am on June 26, 2009,
elaine and conor :) said… - ive ordered the books the other day only got what i needed, you can send one to her address if you have a visa card , its really easy to do, if i have any left i will post one to her address ill let you know when i get them. hope i will have one left:)
- At 12:09pm on June 24, 2009,
Noelle & Nasaya Coleman said… - Hi back 2 u......In answer 2 ur question... When I 1st found out i was pregnant(sept 2008) I was already diabetic so they did an ultrasound bcause I was considered a high risk pregnancy. I had an abnormal ultrasound and in Oct I had an amnio.....the results came back saying she had Pks.....
- At 5:04am on June 23, 2009,
elaine and conor :) said…
- hi yea its great i know he sits only for a couple of seconds but im so proud of him he is doing really well lately.
i have bought some books , its 12.50 dollars i think its about 10 euro for one, where abouts in ireland do they live? im going to order more books just waitng on an invoice.
- At 8:30pm on June 5, 2009,
pookiesnurse said… - Now that the winter is over, he is doing SO much better.
One of the big changes is that we have changed his feedings to smaller, more frequent feeds and he is tolerating them GREAT! He is happier and his mom is finally getting some sleep at night!
I am out of town right now getting my IV certification, but he is suppose to be getting a stander while I am gone and I can't wait to get back and see how he likes it!!!
- At 6:14am on May 31, 2009,
Bec Paton said… - Hi Terzita,
We are only an hour or so from Melbourne so if you can over here, we would certainly love to see you!
- At 7:22am on May 29, 2009,
tracy ayres said… - thanks for the advice about the blood test,will definatly ask at the hospital.alessia is so lovely.
- At 7:01am on May 2, 2009,
Bec Paton said…
- Really liked seeing your photos! Alessia is so much like Sarah. I wish we could get them together somehow... maybe one day.
- At 5:46pm on April 1, 2009,
Gretchen & Simon said… - Haven't heard much out of Nic lately (lol) ---hope everything is well in Australia!
XOXOOX
- At 3:52pm on March 21, 2009,
Tom Amber and Shelby said… - They get smelly because of the sweat from being clentched so tight.
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