A Forum For Those Touched By Pallister-Killian Syndrome
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Natasha Goodman
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ahh he has changed sooo much since august natasha !!!!
PS. I want to 'tag' his cheeks. They are so grabbable! :)
Yeah, he is doing well Natasha! I'm really pleased for you - and he's really enjoying that book!
Look at him standing! What a star!
Awww...I love when Simon rubs his eyes.
Wow, this is awesome...Ranulph is doing so well. Love his little bib too :)
Look how stylish you are :)
Super cute!!!!!!!
Wow; he looks like he has great leg (in other pic) and upper trunk support! He so precious :)
it looks like he's doing really godd :)
Ah look at his gorgous smile. He looks so happy looking at his mummy.x
Isn't she gorgeous :)
Saw dietician/nutritionist yesterday. Ranulph is going to have blood, urine and stool tests as he feels that nutrition is a key factor of muscle development and tone. Obvious I guess really. Once results are back a few weeks I guess he will review...
Profile Information
- What is your child's name?
- Ranulph
- How old is he or she?
- 11 months
- At what age was your child diagnosed with PKS?
- January 28, 2009
- How long ago was the diagnosis?
- 6 months
Natasha Goodman's Photos
Comment Wall (9 comments)
- At 9:37am on November 13, 2009,
Kelsey/ cammie said…
- Hello Natasha
Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com
Everything will be keep confidential
- At 2:46pm on August 4, 2009,
tracy ayres said…
- thanks natasha,im glad you enjoyed it.i did try to get round to everyone but i just dont know where the time went!! will let you know if we have any other gatherings.
take care.xxxx
- At 6:17am on August 4, 2009,
Sally-Anne Wilkinson said…
- Aw it was a great day, and lovely to meet you and Ranulph too (though he was asleep the whole time we were speaking! I'm so envious, Lucy never slept like that!!!) Lucy absolutely loved it - she didn't want to go home!!!!
Take care and keep up the fantastic job you are doing with Ranulph. He's gorgeous :) Remember to keep us updated on his progress!!!
- At 2:46pm on August 1, 2009,
elaine and conor :) said… - hi, i love the pics!!!
so cute and looks like doing well!
- At 5:13pm on July 30, 2009,
tracy ayres said…
- looking forward to meeting you on saturday xx
- At 10:39am on July 29, 2009,
Gretchen & Simon said…
- Natasha--I'm so glad you're going to the PKS family meeting! HOORAY! You'll be so glad you did. xoxoxo
- At 7:52am on July 29, 2009,
Sally-Anne Wilkinson said…
- Do you know, aren't some people awkward??? Especially when you can go into Debenhams and they have a microwave in the restaurant especially for parents to use for the children. How annoying... Grrrr!
Could you warm up the food before you set off and put it into a thermos flask? You can get those little ones to put hot food into. It's a possibility.
Anyway, really looking forward to meeting you and Ranulph there. That's great news :)
- At 7:29am on July 29, 2009,
Sally-Anne Wilkinson said…
- Hi Natasha - I notice you are from Kent. A few parents are meeting in the Lido Cafe at Hyde Park on Saturday 1st August from 12pm. You are very welcome to join us. I will definitely be there with my daughter Lucy, and I am travelling down on Friday morning. Hope to see you there, if you can make it.
- At 7:24am on July 29, 2009,
Gretchen & Simon said…
- Natasha, it's so nice to meet you! I look forward to seeing and hearing about Ranulph. :)
Gretchen
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