A Forum For Those Touched By Pallister-Killian Syndrome
Lea's Page
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sweet girl
so sweet!
Tina is a cutie :)
Big girl! With very pretty blue eyes :)
Cute pic!
That is marvelous!!!
Profile Information
- What is your child's name?
- Tina
- How old is he or she?
- 3,5
- At what age was your child diagnosed with PKS?
- December 23, 2006
- How long ago was the diagnosis?
- 2 years ago
Comment Wall (11 comments)
- At 9:51am on November 13, 2009,
Kelsey/ cammie said…
- Hello Lea
My name is Cammie Gray I am a parent of a PKS Kid and a board member. Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com
Everything will be keep confidential
- At 7:38pm on April 5, 2009,
Gretchen & Simon said…
- Lea, glad Bec gave you Gudrun's info...Gudrun is so nice and would be eager to correspond I think!
Tina is very sweet and seems to be doing quite a bit. XO
- At 6:42pm on April 4, 2009,
Bec Paton said…
- Hi Lea,
I know of another family in Germany. Gudrun and David Porter have Emma who is 6 years old and has PKS. Her big sister Ellen is 8 (and fine). I'm sure they would love to hear from you. Email: david@djgp.com
Cheers,
Bec
- At 10:05pm on April 3, 2009,
Bec Paton said…
- Hi Lea,
Sarah and Tina seem to have a lot in common. Sarah was born Jan 06 and diagnosed in Sept 06. She spends a fair bit of time in her stander (jenx monkey) and is only just starting to grasp object.
Tina is soooo cute!
Bec
- At 6:33am on March 19, 2009,
Sally-Anne Wilkinson said…
- Hey Lea, how are things with you? Hope that everything is well for you and Tina? You'll have to get some more pictures posted - she looks such a cutie :)
- At 5:31am on March 11, 2009,
elaine and conor :) said… - hi , hows tina getting on ? conor is 2 in may,
- At 6:18pm on March 10, 2009,
Sally-Anne Wilkinson said…
- Lucy is doing well... She's a bit older than Tina (she's 7 in May) but we only found out her diagnosis in March last year. She's in mainstream school with a full-time learning assistant, and seems to be progressing very well this year. How is Tina doing? She looks beautiful.
This group is great for friendship and support I find, if I am worried about Lucy, or I just want to share something that has happened. Everyone understands what it is like :)
In August, we are having a get-together in London for many of the UK parents and their children. None of us have ever met, so it will be a first for all of us! I know it's far for you to travel, but if you are interested, everyone is welcome. You can find out more information on the Events link at the top of this page. It would be great if we could see you and Tina there!
- At 5:26pm on March 10, 2009,
Sally-Anne Wilkinson said…
- Hi Lea, looking forward to hearing about Tina x
- At 7:20pm on March 3, 2009,
Barclay family said… - Welcome Lea and Tina!
- At 4:42pm on March 3, 2009,
Luis, Speshelle, Kennedy and Zoe said… - Welcome!!!!!!
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