PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Krystal N Foster
  • Female
  • Fairdale, KY
  • United States
Share 

Krystal N Foster's Friends

Krystal N Foster's Discussions

 

Krystal N Foster's Page

Gifts Received

Gift

Krystal N Foster has not received any gifts yet

Give Krystal N Foster a Gift

Latest Activity

love that smile
November 26
November 13
he is such a big boy
November 9
what a pose!
November 5
oh my goodness thats awesome
November 2
hope they got lots of candy
November 2
she is soo cute!
November 2
they are adorable!!!
November 2
Krystal N Foster added 6 photos
November 2
October 29
October 29
October 28
October 28
October 28
yeah we're still waiting on kadens too, but thats alot of hair!
October 27
what a sweetie!!!
October 21

Profile Information

What is your child's name?
Kaden
How old is he or she?
4 months born 3-18-2009
At what age was your child diagnosed with PKS?
March 24, 2009
How long ago was the diagnosis?
4 months ago

Krystal N Foster's Photos

Loading…

Krystal N Foster's Videos

Krystal N Foster's Blog

Krystal N Foster

Testing

Kaden had 3 test done at Kosair Childrens Hospital on Aug 25th an EEG, MRI and Audiology. Kaden failed his newborn hearing, and when he was retested a few weeks later he had a slight hearing loss in his right ear, and a moderate loss in the left but they told me he needed tubes because he had fluid on his ears. The tubes did the trick because his hearing is now normal!!! yay! They are going to retest him in 4 months just to keep track of it. His EEG and MRI normal as well. So, good news here! La… Continue

Posted on August 28, 2009 at 5:01pm — 3 Comments

Krystal N Foster

doctor update

EYE DOCTOR: Kaden went to the eye doctor yesterday, I noticed that some children on the website have glasses, and I didn't know if it was apart of PKS or not. So his check up was okay for now, the doctor said that he was a little nearsighted, and has stigmatism which both by parents do as well. He told me that Kaden only being 4 months that he could grow and his eyes get better or worse, but for now he's fine, and we have another check up scheduled for JAN.

Peditrician: we went th… Continue

Posted on July 28, 2009 at 12:04pm — 4 Comments

Krystal N Foster

7/17/09

Kaden Had his tubes put in both ears yesterday. Everything seemed to have went good, and his ENT told me that he has small ear canals not sure if he meant for his age or in general. Then he explained what to do with the drops and said Kaden would be out in 10 minutes. Shortly after we heard Kaden crying, and then he stopped and 30 minutes had went by and I was starting to get worried. So Kaden's dad asked one of the nurses what was going on & if Kaden was okay. She came back and told us that… Continue

Posted on July 17, 2009 at 5:53pm —

Krystal N Foster

YAY!

Today when I was cleaning I put Kaden on his mat to play, and I didn't hear him kicking his toy like usual. So I went over to check on him and half the top of his body was off the mat, and on the carpet. So I placed him back on the mat, and watched to figure out how he got like that. He got real still and bent his legs then began to scoot while laying on his back all the way off his mat. I was so proud!! Everytime he does something new he amazes me! ...forgot to mention on Kaden's update he has… Continue

Posted on July 10, 2009 at 9:32pm — 3 Comments

Krystal N Foster

Update on Kaden!!!!!!!!!!

It has been awhile since I have been on. Where do I start....Kaden has seen a genetic doctor, but they couldn't tell me much yet of course, but they were great on referring me to First Steps, and an ENT for the fluid on Kaden's ears. First Steps is a great program right now they have a physical therapist coming out twice a week she is helping Kaden, and showing me great methods on how to work kaden. He was having trouble turning his head to the left but is doing much better. He is alittle behind… Continue

Posted on July 8, 2009 at 7:07pm — 1 Comment

Comment Wall (25 comments)

You need to be a member of PKS KIDS to add comments!

Join this Ning Network

At 9:46am on November 13, 2009, Kelsey/ cammie said…
Hello Krystal

Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com

Hopefully you guys will be able to attend and we can finally meet.

Everything will be keep confidential
At 4:20am on October 29, 2009, Ivy Ashby {Grandmother} said…
Hi again forgot to say Kassius is too having solids as well. Julie say,s he is a real porker
At 4:17am on October 29, 2009, Ivy Ashby {Grandmother} said…
Hi Krystal, Kassius was born on Valentines day 14/2/209 so he is about 8 months. so since he has had his hearing aids he is doing more' He is getting stronger every day holding his head up on his own using his hands more Mum does his exercises every night which makes him sleep better through the night . She was saying he loves to have his own space . It sounds like he has a mind of his own and he will let you no what he wants and when he growls he means i want it now I think that is really cool . cheers Ivy
At 3:40pm on October 28, 2009, Ivy Ashby {Grandmother} said…
hi Krystal, How old is Kayden now looking at his pictures he is so special and as they say these children are sent to us for a reason. Have you noticed progress the older he gets and do you find it hard not noing what they want. Julie finds she has to guess and she tries everything till he stops throwing a wobbley. He sure no's how to get what he wants even at his youg age.His mum say's he is getting spoilt. I say who cares!!! cheers Ivy
At 3:20am on October 28, 2009, Ivy Ashby {Grandmother} said…
Hi Krystal its great that kassicus is coming along so well having his hearing aids has made him interact more and laugh more. He no's how to get what he wants.
At 10:13pm on September 11, 2009, Luis, Speshelle, Kennedy and Zoe said…
Thanks Crystal..these girls are more than a handful..I think im going grey at 23!!!!!
At 5:29am on August 18, 2009, Ivy Ashby {Grandmother} said…
hi Ksrystal. Kassicus was born on 14/2/2009 he is about 6 months old now. he has had all the right people in place since he was born. he does physo once a week speach therpy once a week a nurse visits once a week and he has 24hr access to the hospital without having to wait in line for his turn. We are so luckly that the medical profession are making themselves available whenever Julie needs them. He is now learning how to hold his head up without any help. His mum is now introducing him to other types if food so that he will get use to different taste and teaching him to put things into his mouth. he loves sleeping on his dad. i think he feels safe and hearing his dads heartbeat must be very conforting for him. here is a phot off him and his dad having a nap. qute i think
At 8:55pm on August 12, 2009, Gretchen & Simon said…
That makes me laugh! I've been thinking about it too. Our logo is here: http://www.pkskids.net/

I hope within 2 months I'll have a PKS awareness ribbon made up!! That's what I want I think.
At 11:39pm on July 25, 2009, Gretchen & Simon said…
You are very welcome! Ask me anything you want!! :) GOOD LUCK!
At 9:18pm on July 25, 2009, Gretchen & Simon said…
Hi Krystal! Myoclonic jerks look very similar to that and in fact somewhere I read that we all do some variation of a myoclonic jerk when we startle in our sleep like that. Simon's were more just a quick jerk--not necessarily involving a big part of the body. I think it very well could be and you should mention it to Kaden's doctor. An EEG might be in order. I hope this helps you. I prayed so hard that seizures would be the one thing that wouldn't affect Simon because they sound so awful. However, he does have them. It's just one more thing to get used to. Hang in there and just speak to the doctor about them.

XO Gretchen
 
 

About

the zanes the zanes created this Ning Network.

Badge

Loading…
 

© 2009   Created by the zanes on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service

Sign in to chat!