A Forum For Those Touched By Pallister-Killian Syndrome
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Kelsey/ cammie
- Florissant, MO
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Kelsey/ cammie's Discussions
fundraising
Replied Oct 29
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Profile Information
- What is your child's name?
- Kelsey
- How old is he or she?
- 6 years old
- At what age was your child diagnosed with PKS?
- May 1, 2006
- How long ago was the diagnosis?
- she was 1 1/2 old
Kelsey/ cammie's Photos
Kelsey/ cammie's Blog
Happy Thanksgiving
Happy Thanksgiving
Posted on November 25, 2009 at 7:41pm —
Lossing first tooth
Posted on July 13, 2009 at 3:15pm — 2 Comments
Kelsey enjoying first real 4th of July
So it was all so new for her I was excited.
See the photos i have added.
Posted on July 7, 2009 at 3:06pm — 1 Comment
High school graduation
Posted on June 2, 2009 at 6:06pm — 3 Comments
Family reunion
Dont forget that this event is coming up fast. We cant wait to see everyone who can make this trip. If you know you are going to attend or not sure please send in the attached form and you can put on there "may attend". The hotel has agreed to expand the price to everyone before the dates and after the weekend. If anyone has any questions please contact me.
Dr. Krantz will be there to take blood & skin samples from our kids for medical research. If you have already done this… Continue
Posted on March 27, 2009 at 6:00pm —
Comment Wall (59 comments)
- At 5:03pm on November 17, 2009,
Becka Shields said…
- Thanks for the info but I doubt we will be making it this year as we are having a baby in January! What is the date for this years conference?
- At 7:46pm on November 15, 2009,
Austin (Amy Fulwiler) said…
- Hi Cammie,
Sounds great! I would LOVE to hold a fundraiser in this area. OR - I would consider a company donation - but am open to both. My son attends Syble Hopp School and I am always helping them raise funds. So, most importantly, I would love to have the opportunity to educate people on PKS. I truly believe we were given these children for a reason - we are strong women/men who have the ability to juggle our lives and yet provide info to so many people. I will try to compile a budget for the 3 nights, 4 day event - and share it with you. Let me know what I am missing. Thanks!
Amy
- At 10:20am on November 14, 2009,
The Woods said… - Sure, you can share it. We're very excited and I think it'll be good for Jay to have a sibling around. We're sorry we can't make the conference because we look forward to going. We learn so much whenever we get together.
- At 12:42am on November 14, 2009,
Abbey, Brayden, Cory Depoorter said… - Cammie. We are interested in more of the fundraising oppurtunties. cory and I learned so much last time and didnt feel so lost we would love to be a part this year
- At 9:52pm on November 13, 2009,
Antonia said… - Hi Cammie,
Thanks For The Update Of The Fundraising, It Sounds Very Interesting. I Would love to attend but i have 8 kids to take care of and its really hard for me. Hopefully one day i will be able to attend one of those meetings. I Really want to meet more parents. Once again thanks alot, Take Care.
-Antonia
- At 9:26pm on November 13, 2009,
Roxanne Garrigus-Case said… - Hi Cammie, I just found the dates and location on the main page!
- At 9:16pm on November 13, 2009,
Roxanne Garrigus-Case said…
- Hi Cammie, Thanks for the message. Sofia is doing well!! We are working on lots of things and she is really quite the cutie. I went back to a full time teaching job, so I have been adjusting. Last year it was working on my MA. Crazy I know. Sofia finally got hearing aids (yesterday), she is wearing a new Spio suit and they are getting her a kid walk at school!!! Yeah, I have been working very hard for the kidwalk and hearing aids. I will try to catch up later with a better post. I would like to know the dates for the conference/location and where I can direct fundraising donations (putting it in my Christmas letter). Plus now that I am back to work I would like to make a donation. Sofia just lost her first tooth and her mouth looks just like Kelsey's!
- At 5:17pm on November 13, 2009,
Austin (Amy Fulwiler) said…
- I would LOVE to be part of the next conference, and so would Austin. We just went through several weeks of Austin not doing well at all. It made me realize how much more I need to know about his diagnosis. Afterall, we are their advocates. I had doctors switching meds on him like he was just another 13 year old boy! Yikes!
Please let me know what options are available for the 2010 conference. I would give anything to get there...and would hope that Roxie Stahr could make it as well as her son is the same age as my Austin.
Keep me posted!
Thanks,
Amy
- At 3:36pm on November 13, 2009,
ken croxton said…
- Hi thanks for the info on funding, can you tell us where the conference is and when? we live in the channel islands UK and would need to organise the trip well in advance.
Regards ken.
- At 2:10pm on November 13, 2009,
The Woods said…
- Cammie,
Thanks for the notice but I don't think we will be attending the conference this year. I'm going to be having a baby and the due date is July 2nd. That's a little too close for travel! We'll have to wait and see what is going on the following year!
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