PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Camilla/Lauren
  • 38, Female
  • Fort Wayne, Indiana
  • United States
Share 

Camilla/Lauren's Friends

Camilla/Lauren's Groups

Camilla/Lauren's Discussions

fundraising
3 Replies

Started this discussion. Last reply by Kelsey/ cammie Oct 29.

DIAPERS
1 Reply

Started this discussion. Last reply by Christine (Airyn) Oct 5.

 

Camilla/Lauren's Page

Gifts Received

Gift

Camilla/Lauren has not received any gifts yet

Give Camilla/Lauren a Gift

Latest Activity

I think the tonsils/adenoids is a great move. Si has mild apnea but zero swelling in the tonsils and almost non-existent adenoids so they had to rule out that easy fix. He's had tubes for 3 years and they've been just fine...no big deal at all. Wh...
November 17
Camilla/Lauren added a blog post
Lauren has been sick for about a month and a half and then 2 nights ago decided to not want to breathe for about 10 seconds, until I flipped her over and pounded on her back. She has always had larger than usual tonsils and they just keep growing ...
November 13
Ivy, We are taking this idea to our next broad meeting in November to discuss this. We will let you and everyone else know how this can work for all the family members. Thanks for the great idea.
October 29
Hi Camilla/Lauren, Just a thought how would we do fund raising for the group here in New Zealand as Kassicus is the only child here with PKS and talking to people here no one has heard of PKS. Fund raising would not be a problem. The only problem ...
October 26
Hello all, Not only can you get great deals on magazines, music and COOKIE DOUGH at the link above, we've also decided to try something else to fundraise. For all you pop and beer drinkers, would you mind setting a little cup in your kitchen and ...
October 26
Camilla/Lauren added a discussion
this is a link that you may either order a new subscription or renew an existing subscription and money will be donated to pks kids.
October 25
Airyn will probably be getting these when she turns 4. That's the age we were told our state starts paying for diapers. I was wondering how well they work??
October 5
We are positively getting this for lauren! That is if it is not too late :(
October 4
Camilla/Lauren added a discussion
Does any with a child over 3 not have their diaper provided by the state, or insurance pay for them? I have close to 300 XS disposable briefs that I need to get rid of, Lauren has moved up to the next size. These diapers are just generic state pro...
September 30
Sleep, yes I have been doing a lot of that the past couple of months. My mom comes over and I sleep for 2 extra hours every morning. My boyfriend has 3 kids, 2 live with us, then we have Francesca. So, life is busy and after a baby, my body feels ...
September 3
Camilla/Lauren updated their profile
August 23
August 18
lauren has a soft sided brace for her scoliosis that she wears when in an upright position, she started wearing one a little over a year ago and is actually on her second one. it prevents the scoliosis from getting any worse and provideds great su...
August 18
I have considered this for lauren but after hearing of jake's problems i googled some information. what i found is that it can interfere with seizure medications and possibly increase seizure activity. also in one article it says that melatonin is...
August 4
Cam, it's great to hear of Lauren's progress - thanks for sharing her achievements with us. Don't you worry about us not looking after ourselves - every so often, my body gives in and I have to sleep! That's been happening a lot over the last coup...
August 4
Camilla; Happy Friday to you too :) I love Fridays. That is woderful about Lauren saying hi. I say Mama to Alex a million times a day hoping for him to say it back. When he was younger he would say uh-Ma or Ma but then he stopped. He used to say n...
July 31
Camilla/Lauren added a blog post
Hello everyone! I don't really have anything of note to report just thought would say happy friday to everyone! Lauren is doing well. I am awaiting her to start talking. She does say hi rarely, usually when daddy gets home from work and will say H...
July 31
Congratulations Garcia family!
July 30
I am sure you guys will works things out for the best possible solution for shelby. Also sounds like even though you are living apart at the moment you still have each other for support and that is wonderful! Take care of you, that is important fo...
July 29
aww gee thanks guys, *blush blush* i hope you can get the rest out of customs without problems, i guess i should have sent just a few boxes each week and we could have avoided this situation.
July 24

Profile Information

What is your child's name?
Lauren
How old is he or she?
3 years 5 months
At what age was your child diagnosed with PKS?
May 7, 2007
How long ago was the diagnosis?
little over 2 years ago(lauren was just over a year old when diagnosed)

Camilla/Lauren's Photos

Loading…

Camilla/Lauren's Blog

Camilla/Lauren

Tonsils out and tubes in

Lauren has been sick for about a month and a half and then 2 nights ago decided to not want to breathe for about 10 seconds, until I flipped her over and pounded on her back. She has always had larger than usual tonsils and they just keep growing and 3 ear infections in the past 6-8 months, so off to the ENT we went today. I don't suppose it is a good thing when the doc looks in the throat and say WOW those are huge, well at least they finally agree with me on something. So now on December 11th… Continue

Posted on November 13, 2009 at 2:47pm — 1 Comment

Camilla/Lauren

JUST FRIDAY

Hello everyone! I don't really have anything of note to report just thought would say happy friday to everyone! Lauren is doing well. I am awaiting her to start talking. She does say hi rarely, usually when daddy gets home from work and will say HI Lauren and it really does sound like she says HI. Here lately she has been making some sounds that sound like she is trying to say something, fingers crossed. And like all of our kiddos her smile can melt the meanest of people like butter. Hope everyo… Continue

Posted on July 31, 2009 at 12:39pm — 3 Comments

Camilla/Lauren

UGH! Lauren's First day of school

okay we put lauren on the bus for the first time today :(, note it was pouring down rain and we all got soaked. we are doing better now because we went to the school and saw the classroom and the teacher and all her assistants. she is going to do fine. mom and dad , well that is an entirely different story. I never thought it would be this hard. Today not only does Lauren turn three but she gets to ride a bus for the first time and it is the first time she is not with family or her nurse. okay s… Continue

Posted on March 10, 2009 at 11:14am — 6 Comments

Camilla/Lauren

OUTGROWN CLOTHES AND FAM REUNION

Okay i have 2 huge boxes of practically brand new girls clothes, most of them 12-24 months. Since Lauren's surgery in Sept. she has really grown. I am just wondering if anyone who is planning on being at the reunion in June would have any use for these clothes? We would be more than happy to bring them along and pass them on. PSSSSSSST spesh kenny would look really cute in alot of them....lol. Really anyone let me know.

Posted on February 12, 2009 at 12:13pm — 8 Comments

Camilla/Lauren

starting school and whatever else

Hi everyone! Hey Gretchen, I am here, all by myself I might add. Lauren starts special education pre-school through the school system on March 10(her birthday). I am confident she is more than ready for this buuuut I dont think I am ready?? Put her on a bus???? Okay I will probably end up getting pulled over for stalking a school bus...lol. Right now she is in pre-school at Turnstone Center for Disabled 2 days a week and her respite nurse takes her there and stays with her so that is very easy f… Continue

Posted on February 10, 2009 at 10:46am — 9 Comments

Comment Wall (17 comments)

You need to be a member of PKS KIDS to add comments!

Join this Ning Network

At 3:07am on August 28, 2009, Tom Amber and Shelby said…
XXXOOO Hugs and Kisses to Lauren!!
At 3:58pm on August 18, 2009, Lea said…
Hello !
At 7:40pm on August 8, 2009, Tom Amber and Shelby said…
Hey cam and Lauren and the whole family!! Just wanted to send some smooches Laurens way! Hope all is well on your end!! Miss ya guys! XOXO!
At 12:26am on July 16, 2009, Ivy Ashby {Grandmother} said…
Hi Camilla/Lauren Having friends with PKS children will help me understand how we can help our wee ones have a good life and share in the ups/downs e will encounter as we progress each day. I think i am the only nana on this site and i an priviliaged to be part off all these special children watching their progress every day. Please give your wee one a big hug from me Julie and especially from wee Kassius cheers for now NANAi
At 8:30pm on June 30, 2009, Antonia said…
Hi Camilla,

Thank You For Adding Me As A Friend. Your Daughter Is Very Pretty And I Noticed Shes 2 Months Older Than Gerardo and I Was Reading Your Comment And You've Already Passed Through The Situation Of sending Her On The Bus Alone. Im Dealing With That Right Now. Gerardo Started 2 Weeks Ago and Its So Hard To Let Him Go Alone. I Was Riding The Bus For The First Week But I had To Let Him Ride Alone. Its So Painful. But i think it will pass with patient. Take care and A Big Hug For Lauren.
At 1:36pm on June 18, 2009, Kelsey/ cammie said…
The reunion plans are coming together just a few last questions. Can you meet with Dr. K Friday morning? And we have a few ideas for the Saturday activity but would like some feed back.

Zoo-mostly free
City Museum $8.00 per person
Magic house $5.50 per person
Forest Park play ground free
Aquaport water park Under 3 free 16 over $15 per person

Or stay at the hotel and just visit and swim in pool?
At 12:58pm on March 8, 2009, Sally-Anne Wilkinson said…
Sorry Camilla, I have just responded to your message on the chat thing here. I was in another window, so didn't notice you wanted to chat. Honestly, I'm not ignorant! The chat option doesn't seem to make itself obvious when someone has sent a message :(
At 11:31am on February 27, 2009, elaine and conor :) said…
hi camilla im just wondering did you receive my email of conors picture for the cookbook
At 9:08pm on February 15, 2009, Abbey, Brayden, Cory Depoorter said…
I will do that. I totally agree about the government. TO get even a dollar or even better a penny its like you have to jump through all these hoops and you get denied
At 10:39am on February 14, 2009, Abbey, Brayden, Cory Depoorter said…
We are still planning on going to the reunion. Sorry about not emailing you back
 
 

About

the zanes the zanes created this Ning Network.

Badge

Loading…
 

© 2009   Created by the zanes on Ning.   Create a Ning Network!

Badges  |  Report an Issue  |  Privacy  |  Terms of Service

Sign in to chat!