PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Barclay family
  • Female
  • Fredericton, New Brunswick
  • Canada
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Latest Activity

on Thursday
on Thursday
on Thursday
November 13
Super job Cammie! Thanks!!!
October 27
PKS Kids Face2Face 2010 at Mount Laurel, NJ Hilton
June 24, 2010 at 6pm to June 27, 2010 at 12pm
Planning for our 3rd medical conference is underway right now. Although this is just to get us started (more emails and registration requests will be coming), please use the RSVP here to let us know if you're thinking of attending. Please watch N...
October 26
We got one for Lexi and it has been great, she's actually eating everything we are! Now I just need to get one for our sitter so she can give Lexi what ever she gives the other kids, then she will totally be off baby food!!! Yay!!! (except make wh...
October 19
I would LOVE them! We really need to get Lexi off of the baby food. The "real" foor we have given her, she absolutely loves.
October 8

Profile Information

What is your child's name?
Alexa (Lexi)
How old is he or she?
3
At what age was your child diagnosed with PKS?
December 18, 2006
How long ago was the diagnosis?
She was 18 months old

Barclay family's Photos

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Comment Wall (48 comments)

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At 2:09pm on December 3, 2009, Gretchen & Simon said…
Thank you Lexi! Have fun celebrating your mommy's birthday today!
At 11:44am on November 13, 2009, Kelsey/ cammie said…
Hello everyone,
Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com


Everything will be keep confidential
At 9:28pm on October 1, 2009, kerry flanagan said…
Thank you! I plan soon to post some more info about Una and our family. I feel I have to familiarize myself with the site a little more. any tips?
At 4:31pm on October 1, 2009, sophie cantin haguenauer said…
My yougest will have 2 in february. I loved the photo where your youngest try to feed Lexi, it's the same at home
At 12:49am on September 3, 2009, Bec Paton said…
Thanks so much for posting all of those photos of Lexi in her wheelchair. Sarah will have hers soon and you pics are really helping me to get my head around it.
Hugs,
Bec
At 8:23pm on August 30, 2009, Gita Pinto said…
I joined the Canadians group, thanks. I put some pics of Francesca on. I enjoyed looking at pics of your baby.
At 4:45pm on August 28, 2009, Madeleine Wilkinson said…
Thank you for welcoming me it was so nice to hear from you, Sally-Anne is the perfect daughter -in-law she has involved me so much with Lucy since she was born and I have enjoyed every moment as I'm sure your mother has as well
At 11:54am on April 27, 2009, Krystal N Foster said…
Thank you for the welcoming, I'm sure I will be coming to you for much needed advice, and if you have any for me now on what I should start helping Kaden with I would greatly appreciate it.
At 6:00pm on March 14, 2009, Nic, Terzita, Adam & Alessia Acquarola said…
Hi Alexa, thank you for your birthday wishes - I'm so sorry it's taken so long to reply. Daddy (Nic) gets on here more than what Mummy (Terzita) does - but he doesn't look at my page!! Mummy organised a party for me at the park and she invited lots of my little friends and family. The weather was great and I really enjoyed my ice-cream cake! Hope you are doing well. Lots of love Alessia & Co. xx
At 1:14pm on March 14, 2009, Becky, Scott & Devon Gardner said…
Thank you. Unfortunately, Devon has been sleeping much of his 3rd birthday. He came down with influenza b yesterday and is primarily sleeping. It's too bad since I was bound and determined he would eat his birthday cake this year :) (Devon has oral sensitivity and is VERY picky about what he eats. He has been doing so much better lately that I really thought we had a chance this year)
 
 

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