PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Abbey, Brayden, Cory Depoorter
  • Female
  • West Branch Iowa
  • United States
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Welcome to Braydens Page!!!!!!!!

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Profile Information

What is your child's name?
Brayden
How old is he or she?
11 months
At what age was your child diagnosed with PKS?
March 10, 2008
How long ago was the diagnosis?
approx 7 months

Abbey, Brayden, Cory Depoorter's Photos

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Abbey, Brayden, Cory Depoorter's Blog

Abbey, Brayden, Cory Depoorter

Gait Trainer

Question. Brayden will begin using a gait trainer. Has anyone ever used one?

Posted on November 14, 2009 at 11:14pm —

Abbey, Brayden, Cory Depoorter

Gait Trainer

Question. Brayden will begin using a gait trainer. Has anyone ever used one?

Posted on November 14, 2009 at 11:14pm —

Abbey, Brayden, Cory Depoorter

Please Vote and tell everyone!!!! Thanks

my mom got flesh eating bacteria and lost her right dominate arm. She came through what many would say is a miracle. Some of her co-workers have nominated her for a cruise through a local radio station. On Friday, Nov. 6th whoever gets the most votes will win a cruise. For all that she has endured this year. You can vote for her at http://knws.nwc.edu/page.php You can only vote for her this coming Friday afternoon

Posted on November 4, 2009 at 3:44pm —

Abbey, Brayden, Cory Depoorter

BIG NEWS

JUST THOUGHT WE WOULD LET THE BIG NEWS OUT. BRAYDENS GOING TO HAVE A LITTLE BROTHER. EVERYTHINGS GOING GOOD

Posted on October 1, 2009 at 8:03pm — 5 Comments

Abbey, Brayden, Cory Depoorter

I know dont fall over I'm updating

So I havent updated for a while. Everythings going good I am due Feb 27 quite excited. Brayden can fully sit on his own. He can pull himself to sitting and clap constantly. 6 in the morning rolls around and we hear clapping. Anyways I still have pics to put up of the reunion and all you can tell im a procrastinator plus we are getting married sept 12. I know I cant believe a year has gone by already it seems like it flew. I will be posting pics of the wedding up after we get back from our honeym… Continue

Posted on August 26, 2009 at 8:21pm — 4 Comments

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At 12:56pm on November 25, 2009, Becky, Scott & Devon Gardner said…
Scott was just checking voicemail when I called him about your message. He should be calling you back shortly, and is expecting you at 1 p.m.
At 5:06pm on November 24, 2009, Becky, Scott & Devon Gardner said…
Scott works at University Hospitals and Clinics. You can meet him at the Family Care Center Entrance which is right off of Melrose. This is a drop off entrance which should work well to transfer the gait trainer. Call Scott at 353-7058 (his work number) to coordinate when you are close. If you could leave me a cell phone number as well, I'll make sure he has that to reach you. I will include the gait trainer, the handles, dvd, and general information on the trainer. I also have two other items that I purchased for Devon. One is shoe inserts. These just go in the shoe and offer a little more support for walking. Our PT recommended them and he used them for several months, but they are molded plastic and still in excellent shape. The other is sunglasses with a band to keep them in place. Devon is very sensitive to light, and I thought these would help, but he never would leave them on :) If you want those, I can send them as well. Good luck!
At 9:51pm on November 23, 2009, Becky, Scott & Devon Gardner said…
Just had the chance to sit down at the PC again after the big move. I could have Scott bring down the Gait Trainer on Wednesday. His lunch hour is 1-2 p.m. this week, and he gets off at 5. His work phone is 319-353-7058 if you would like to coordinate where you can pick it up.
At 9:16pm on November 17, 2009, Becky, Scott & Devon Gardner said…
I would love to have someone else use it. My husband Scott works down in Iowa City at University Hospitals. We are moving this week, but next week I could have him bring it down a day. Call me at 319-551-8159 and we can arrange a day.
At 9:14pm on November 16, 2009, Becky, Scott & Devon Gardner said…
Yes. In fact our physical therapist knew he would only need it for a short time, but over six months it did the trick. It can be difficult to use around the house because it is boxy, but we made it work. As soon as it got nice I had him outside with it going up and down the sidewalk. He loved it. Our gait trainer was paid for via insurance, and I am actually looking to donate it at this point. It is just about brand new and has all the necessary accessories. Devon actually started walking on his own at two years, two months, and I believe all the exercise and independence in the gait trainer led to that.
At 10:18am on November 13, 2009, Kelsey/ cammie said…
Hello Abbey,

Hope you are doing well.

Just a update on the 2010 Medical Conference for families with PKS Kids. This year the board has come up with a way to help families meet the financial need for attending the conference. If you are interested in attending and have questions on how this works please contact me at cammie_gray@hotmail.com


Everything will be keep confidential
At 5:15am on August 31, 2009, Sally-Anne Wilkinson said…
Brayden's new pictures are adorable - he's so handsome. He also looks like he's doing fantastically well physically! WAY TO GO BRAYDEN!! xx
At 2:44am on August 28, 2009, Tom Amber and Shelby said…
Miss you guys! Can't wait to see you at the wedding! :) :)
At 1:38pm on June 18, 2009, Kelsey/ cammie said…
The reunion plans are coming together just a few last questions. Can you meet with Dr. K Friday morning? And we have a few ideas for the Saturday activity but would like some feed back.

Zoo-mostly free
City Museum $8.00 per person
Magic house $5.50 per person
Forest Park play ground free
Aquaport water park Under 3 free 16 over $15 per person

Or stay at the hotel and just visit and swim in pool?
At 2:15am on June 16, 2009, Tom Amber and Shelby said…
Getting closer!!! When are you guys getting there??? Tom and I are last minute planners so we will come whenever you guys do. Feel free to call me and we can make some plans!!
 
 

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