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This group is for those who live in the UK for discussion of services, education, etc applicable to them.
Members: 11
Created By: Gretchen
Latest Activity: May 5
Hi to all of you I'm Julia, mum to Matthew (7) PKS and Daniel (3) NF1. Like many UK families the first support group I was referred to on diagnosis was Unique (www.rarechromo. org). Unique is have... Continue
Started by Julia Bainbridge Apr 7
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