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PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

UK Families

Information

UK Families

This group is for those who live in the UK for discussion of services, education, etc applicable to them.

Members: 11
Created By: Gretchen
Latest Activity: May 5

Discussion Forum

UK Conference

Hi to all of you I'm Julia, mum to Matthew (7) PKS and Daniel (3) NF1. Like many UK families the first support group I was referred to on diagnosis was Unique (www.rarechromo. org). Unique is have... Continue

Started by Julia Bainbridge Apr 7

Comment Wall (8 comments)

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8 Comments

Cora Byrne Comment by Cora Byrne on May 5, 2008 at 4:47pm
Hi all this is Billy and we live in Ireland. Billy is just over a year old and just been diagnosed so dont really know much about anything but hoping to learn and meet others who we can chat with. Billy is very healthy he has no illnesses so far hoping he stays this way. All early days for us so any advice would be greatly appreciated. Cora and Tony
Julia Bainbridge Comment by Julia Bainbridge on April 7, 2008 at 1:46pm
Hi we live in Abingdon in the south of Oxfordshire. Matthew is 7 years old and has a younger brother Daniel who is 3.
Sarah Clarkson Comment by Sarah Clarkson on April 5, 2008 at 4:29pm
Hi my daughter is Ella May Wynne. It would be lovely to keep in contact with other families. We live in Denbigh North Wales.
Sarah
ANDREW GRUNCELL Comment by ANDREW GRUNCELL on April 2, 2008 at 5:56pm
hi our son is santiago we live in northants.
rob & annette  Millington Comment by rob & annette Millington on April 2, 2008 at 2:43pm
Hi to our UK families ; the picture is me , Rob , & Michael our 13 year old , although he's a bit bigger now. We're always glad to join in any discussion about PKS , and offer any help and advice , as well as learn from other families with similar problems. We look forward to getting to know you all a little better.
Sally-Anne Wilkinson Comment by Sally-Anne Wilkinson on April 2, 2008 at 5:46am
Hello there,

I live in Littleborough just outside Rochdale - would be great to hear from you all.

Sally x
Cheryl Comment by Cheryl on April 1, 2008 at 5:18pm
Hello,
I'm Cheryl Savannah's mum. We live in Bristol....would love to chat with families in the UK..!!
Sally-Anne Wilkinson Comment by Sally-Anne Wilkinson on April 1, 2008 at 3:34pm
Woo hoo! Thanks Gretchen :)

Er... anyone out there????
 
 

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