PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

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IRISH families

hi this group is families from ireland , feel free to join whether your from ireland or not.

Members: 5
Latest Activity: May 11

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12 Comments

liz masterson Comment by liz masterson on May 11, 2009 at 6:58am
hi everbody i have added some photos of Dylans holy communion which was on Friday, as you will see he was not having that in his mouth as most of then did not either, What a lovely day it was too, and Dylan also new it was something special going on, he loved the suit, lots of posing going on and looking in mirrors, lovely
granny liz
liz masterson Comment by liz masterson on December 22, 2008 at 8:58am
happy christmas to all and a very happy new year, from Dylan and family
elaine and conor :) Comment by elaine and conor :) on December 20, 2008 at 10:18am
just want to wish everyone a very happy christmas and a happy new year!!!!
elaine and conor :) Comment by elaine and conor :) on November 21, 2008 at 9:07am
hi cora , im not bored listening to you god dont be silly. the services here is alot better if ya want something they try for you, would you move from where ya are now? conor did the hydrotherapy in navan co meath its in a special heated pool its so relaxing , myself and the mary the physio had him doing loads . also im going to view a special school next week too its also in navan. i have applied to the jack and jill foundation too they send a nurse out to your house for an hour or two ,2 or 3 days a week , and its free!!!! , it gives me a little break even if its only going for a coffee with a friend,
have ya got anywhere with your services yet? did they get any equipment? we should meet up sometime after x mas and i can show you the stuff conor has etc. cause your entitled to everything. even my physio is always asking about you and billy and she thinks its rediculous ( cant spell :) )
Cora Byrne Comment by Cora Byrne on November 20, 2008 at 4:52pm
im moving to meath! it definetly seems to be the place to be for services elaine you must be so bored listening to me complaining but your crowd seem to be so pro active Im presuming they did the hydro therapy with Conor the nearest billy gets to hydrotherapy is me giving him a birdie bath on the counter as i cant get him into the bath.............depressed
elaine and conor :) Comment by elaine and conor :) on November 20, 2008 at 2:28pm
hi ,liz , ah thats great , its one of those schools that im seeing next wednesday not sure which one but it is in johnstown, does he like school? conor did hydrotherapy in the health centre in navan, he loved it.
liz masterson Comment by liz masterson on November 20, 2008 at 1:44pm
hi elaine, you don't live to far away from us, Dylan now goes to St Marys special school in Johnstown, before this he was at the special unit in Ballis johnstown he started there at 3years of age.We live in Johnstown so its very handy. yes we can meet up one day that would be nice. Dylan has an extra cromo and split 11-12 so he has a varient of pk
elaine and conor :) Comment by elaine and conor :) on November 19, 2008 at 1:36pm
hi liz, we learned 60 signs at a class and we are trying to sign ma ma and dada, the signing we done is called LAMH. i live in duleek co. meath , where do yous live in meath? i would love to meet dylan and yourself and his family. what school is dylan in? im going to look at one next week in navan.
liz masterson Comment by liz masterson on November 19, 2008 at 6:46am
thanks for that info, I believe there is an irish signing which he will now be starting in school called LOVE, we had a meeting with his school and have decided that we will all learn together, that way Dylan won't be confused.
Gretchen & Simon Comment by Gretchen & Simon on November 18, 2008 at 4:12pm
Liz- I don't know if you can order signing times videos from Ireland (they're from the US) but they are AMAZING! We have the best time with them. Simon of course can't do them, but me and the girls do and LOVE THEM!. www.signingtimes.com
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Members (5)

elaine and conor :) Cora Byrne liz masterson Gretchen & Simon Christine (Airyn)
 
 

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