PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

Untitled Category (73)

Featured Discussions
Kate

Magic Bullet mini blender

Luke got a Magic Bullet for his birthday. This little machine is awesome! Luke is now eating mostly REAL food. I am still working on the ...

Started by KateLatest Reply

Discussions Replies Latest Activity
Kate

Magic Bullet mini blender

Luke got a Magic Bullet for his birthday. This little machine is awesome! Luke is now eating mostly REAL food. I am still working on the ...

Started by Kate

24 Nov 14
Reply by The Woods
Quist Family

Welcome to Holland Movie Premiere

Good Afternoon Friends, We are happy to report the second viewing of Welcome to Holland is scheduled for this Thursday here in Rochester ...

Started by Quist Family

7 Nov 13
Reply by Sally-Anne Wilkinson
Camilla/Lauren

fundraising

this is a link that you may either order a new subscription or renew an existing subscription and money will be donated to pks kids.

Started by Camilla/Lauren

3 Oct 29
Reply by Kelsey/ cammie
Kelsey/ cammie

Seizure video of our kids

I have a request. Kate H and I are heading to a medical conference October 14 to meet with 900 pediatric neurologist and i am looking for...

Started by Kelsey/ cammie

9 Oct 19
Reply by kerry flanagan
Kate

Child Neurology Society conference update

Cammie and I just attended the annual CNS conference in Kentucky for PKS Kids. This is the main professional organization for pediatric n...

Started by Kate

1 Oct 18
Reply by Gretchen & Simon
Gretchen & Simon

Swine Flu shot

Will any of you vaccinate your child/ren against the Swine Flu? I, personally, never get the flu shot, though Jim does. Simon has had the...

Started by Gretchen & Simon

17 Oct 17
Reply by kerry flanagan
Camilla/Lauren

DIAPERS

Does anyone with a child over 3 not have their diapers provided by the state, or insurance pay for them? I have close to 300 XS disposabl...

Started by Camilla/Lauren

1 Oct 5
Reply by Christine (Airyn)
Gretchen & Simon

PKS Kids Bike Run 2009

I'm so happy and thankful I got to attend. Mike and Nicole work their hineys off on this and it was another huge success. Here is a link...

Started by Gretchen & Simon

3 Sep 25
Reply by Rodriguez-Velazquez family
Christine (Airyn)

News from Unique

Not sure if anyone has seen this, but I just caught it in my email this morning! Jeans for Genes Appeal & Study Days 2010 This year...

Started by Christine (Airyn)

3 Sep 24
Reply by Sally-Anne Wilkinson
Gretchen & Simon

Photo of your child

Hello everyone! We are slowly making some big changes to our website and we are also putting together a dvd of photos and facts together...

Started by Gretchen & Simon

1 Sep 17
Reply by Sally-Anne Wilkinson
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