A Forum For Those Touched By Pallister-Killian Syndrome
Discussion Forum (185)
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Magic Bullet mini blenderLuke got a Magic Bullet for his birthday. This little machine is awesome! Luke is now eating mostly REAL food. I am still working on the ... Started by Kate in Untitled CategoryLatest Reply |
Research Information and OpportunityPlease see attached, a letter, from Dr. Krantz regarding the research on PKS being done at Children's Hospital of Philadelphia. Started by Gretchen & Simon in Untitled CategoryLatest Reply |
Family ReunionI'm adding this here because there is a form Cammie and Kate need you to submit to them. June 26-June 28, plan on joining the fun in St.... Started by Gretchen & Simon in Untitled CategoryLatest Reply |
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Welcome to Holland Movie PremiereGood Afternoon Friends, We are happy to report the second viewing of Welcome to Holland is scheduled for this Thursday here in Rochester ... Started by Quist Family in Untitled Category |
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10 hours ago Reply by Quist Family |
fundraisingthis is a link that you may either order a new subscription or renew an existing subscription and money will be donated to pks kids. Started by Camilla/Lauren in Untitled Category |
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Oct 29 Reply by Kelsey/ cammie |
Magic Bullet mini blenderLuke got a Magic Bullet for his birthday. This little machine is awesome! Luke is now eating mostly REAL food. I am still working on the ... Started by Kate in Untitled Category |
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Oct 19 Reply by Gretchen & Simon |
Seizure video of our kidsI have a request. Kate H and I are heading to a medical conference October 14 to meet with 900 pediatric neurologist and i am looking for... Started by Kelsey/ cammie in Untitled Category |
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Oct 19 Reply by kerry flanagan |
Child Neurology Society conference updateCammie and I just attended the annual CNS conference in Kentucky for PKS Kids. This is the main professional organization for pediatric n... Started by Kate in Untitled Category |
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Oct 18 Reply by Gretchen & Simon |
Swine Flu shotWill any of you vaccinate your child/ren against the Swine Flu? I, personally, never get the flu shot, though Jim does. Simon has had the... Started by Gretchen & Simon in Untitled Category |
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Oct 17 Reply by kerry flanagan |
DIAPERSDoes anyone with a child over 3 not have their diapers provided by the state, or insurance pay for them? I have close to 300 XS disposabl... Started by Camilla/Lauren in Untitled Category |
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Oct 5 Reply by Christine (Airyn) |
PKS Kids Bike Run 2009I'm so happy and thankful I got to attend. Mike and Nicole work their hineys off on this and it was another huge success. Here is a link... Started by Gretchen & Simon in Untitled Category |
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Sep 25 Reply by Rodriguez-Velazquez family |
News from UniqueNot sure if anyone has seen this, but I just caught it in my email this morning! Jeans for Genes Appeal & Study Days 2010 This year... Started by Christine (Airyn) in Untitled Category |
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Sep 24 Reply by Sally-Anne Wilkinson |
Photo of your childHello everyone! We are slowly making some big changes to our website and we are also putting together a dvd of photos and facts together... Started by Gretchen & Simon in Untitled Category |
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Sep 17 Reply by Sally-Anne Wilkinson |
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