Hey Everyone





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Sarah has her new Zippie Iris Wheelchair and it is fantastic! So cute, compact and light! Tilts back to 55 degrees too!
It is soooo much better than the interin chair we had whilst we waited for this one. It is a lot lower so Sarah and Hannah can now see eye-to-eye. They love it at her Kinder and she is showing more interest in interactin with the other 4 year olds (mainstream).
Sarah has also had her 4th turn on the treadmill and her physio says she appears to be trying to lift her rig… Continue

No baby brother yet but wanting out. I went into early labor at 32 weeks and they were able to stop it. I am 36 now and having major contractions wtih 4 cm dialated but trying to wait as long as possible. For bray he is just doing amazing things each day. He can sit up from laying flat. He crawls everywhere and now is starting to pull himself up with things. He shakes his head NO and pushes things away if he doesnt want them. Also standing by himself is his new thing but better hope nothings

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Just some more updates. I've been following the multiple syndrome thread at the yahoo group and it's been interesting. I sometimes wonder myself if it is possible for some of our kids to have more than one diagnosis.

Airyn's nephrologist reduced one of her blood pressure meds to 2X a day instead of 3X (Isradipine) because her pressure readings have been under the 100 range. Glad for this..just hope it continues. I think that because she is more mobile now and trying to stand/walk it might be he… Continue