PKS KIDS

A Forum For Those Touched By Pallister-Killian Syndrome

A public forum for those impacted by Pallister-Killian Syndrome. Please also visit our non-profit organization's site at www.pkskids.com

Notes

Face2Face 2012

Hi everyone, Please open the attached for details and registration for the conference. A wonderful donor is paying up to $260.00 for your hotel bill, so we hope this helps you make your decision to JOIN US!



Registration%20letter%20form%202012.docx  

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Created by Gretchen & Simon Feb 22, 2012 at 8:52am. Last updated by Gretchen & Simon Feb 22.

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To All Families!!

Started by Kate in Untitled Category. Last reply by Kate on Wednesday. 14 Replies

Anat baniel

Started by Juliet and Jason Dawkins in Untitled Category. Last reply by Juliet and Jason Dawkins on Monday. 6 Replies

Sleep Safe Bed

Started by Tyra Skibington in Untitled Category. Last reply by Barclay family May 20. 10 Replies

advice on cleft palate repair

Started by Edythe and Naomi in Untitled Category. Last reply by Juliet and Jason Dawkins May 18. 9 Replies

ZipZac Chair

Started by Christine (Airyn) in Untitled Category May 3. 0 Replies

Blog Posts

Mckenna

Posted by Christine Granahan on April 27, 2012 at 11:34pm 6 Comments

Wow- just looked at Mckenna's pics and I am amazed at how much she has grown! She is still one of the funniest little girls I know. I am so excited to see all her PKS buds in June. She amazed me and her teachers daily! Her dance teacher is truly amazed by her! She remembers the names of the ballet positions and can do most of them (except leaps or skipping!) She now loves tap- but I am afraid she will wipe out in tap shoes. She is a chatter box too- music to my ears- especially " love you…

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Kassius

Posted by Ivy Ashby {Grandmother} on April 18, 2012 at 10:54pm 0 Comments

Hi Gretchen/Simon

Thanks for that just posted photo's of a painting he did for me When i look at the snapshots i took of the painting one shows me mary and Joseph and the other one if off their dog diesel. what do you think and there is one snap shot from the painting of christ. When he gets sick he comes to me through his painting so i call Julie. Gets quiet frightening but i talk to his painting if i can't get there

Kassius

Posted by Ivy Ashby {Grandmother} on April 18, 2012 at 7:16pm 0 Comments

th is latest photo of him ih hospital cuddling his best friend. the other was his first painting

Kassius

Posted by Ivy Ashby {Grandmother} on April 10, 2012 at 7:22pm 8 Comments

Hi everyone Just got a call from Julie Kassius 's  mum to say that Kassius is back in hospital again with a bad cough seems like he never quiet got over his last hospitral visit. they say he has got one lung that has partly collapsed so they have to give him more off those horrible antibiotic injections again which he always cry's he also has to have physo to try and remove the stuff that is in his lung so maybe it may reinflate again here's hoping and I pray that he does not give up' I have…

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PKS Kids Video Montage (updated!)

 
 
 

Latest Activity

Edythe and Naomi left a comment for Michael Bentley
"Hello and welcome MJ! Such a handsome young man!"
8 hours ago
Juliet and Jason Dawkins left a comment for Michael Bentley
"Welcome mj!  Our daughter was born a month after mj.  Looks like he's doing pretty good from the handsome pic!  "
Friday
Kate replied to Kate's discussion To All Families!!
"From Alisha Wilkens- genetic counselor working with Dr. Krantz:  A word about Privacy and Use of your children's medical information-- What about privacy, authorization for use of Personal Health Information (PHI) and…"
Wednesday
mona schneider posted a status
"Wir sind auf einer mutter-kind kur aber yana geht es schlecht nur fieber im kindergarten zuwenig kuscheleinheiten es ist nicht gut für sie !"
Tuesday

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