A public forum for those impacted by Pallister-Killian Syndrome. Please also visit our non-profit organization's site at www.pkskids.com
June 22, 2012 at 5pm to June 24, 2012 at 7pm – Tyson Corners, VA Westin Hotel
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This cause has been created to fundraise to bring more families to our conference in June 2012. Donations may be made to the general fund or you may sponsor a specific family with your donation (must be noted on check or paypal). If you need a worthy tax deduction for 2011 or 2012, The Family…
ContinueCreated by Gretchen & Simon Sep 2, 2011 at 11:13am. Last updated by Gretchen & Simon Sep 2, 2011.
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Posted by Carla/Samantha Stobbe on January 18, 2012 at 9:17pm 2 Comments 0 Likes
Hello all-
I have posted some new pics of Samantha. She is scheduled to have a third set of ear tubes put in tomorrow. Wish us luck! Other than the tubes, she is doing well. I can't believe she will be turning 3 in April. We can't wait for the conference in June.
Take care,
Carla
Posted by Laurence Arikan on January 7, 2012 at 3:50am 3 Comments 0 Likes
Hello and thank you for your welcome. But first, Maxime is a boy!
I obviously have many many questions but I will first look around the website as I think I can already get lots of information from there. We feel very isolated here as our doctors are not much help in everyday life and we have organized Maxime's routine on our own. They don't seem to know much about PKS either but from what I can read here, it can be very different from one kid to the next.
Posted by gemma bielby on December 18, 2011 at 5:58pm 8 Comments 0 Likes
thankyou for the welcomes - sorry its taken me so long to get back on here. i don't think i was quite ready for all this until recently. abi is making slow progress but every little thing she does makes me so proud of her! she has a twin brother, tyler, who looks out for her and will give her a dummy if she cries - it's so cute!
anyway, i'm looking forward to getting to know you all and sharing stories :) x
Posted by Elizabeth & Anthony on December 18, 2011 at 1:02am 4 Comments 0 Likes
I must apologize for being away from this site for so long...someone should have warned me that having 2 kids would be so much more work!!! It's been a few months since I've posted about Anthony's progress. My little Ant just turned 4! He's doing great in school and at therapy. The hospital just hired a new PT (they've been without one for over a year) and she thinks Anthony is ready to start learning how to walk! He is a strong boy and I'm really hoping to see him take his first step in…
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