Hello all-

I have posted some new pics of Samantha. She is scheduled to have a third set of ear tubes put in tomorrow. Wish us luck! Other than the tubes, she is doing well. I can't believe she will be turning 3 in April. We can't wait for the conference in June.

Take care,

Carla

Hello and thank you for your welcome. But first, Maxime is a boy!
I obviously have many many questions but I will first look around the website as I think I can already get lots of information from there. We feel very isolated here as our doctors are not much help in everyday life and we have organized Maxime's routine on our own. They don't seem to know much about PKS either but from what I can read here, it can be very different from one kid to the next.

thankyou for the welcomes - sorry its taken me so long to get back on here. i don't think i was quite ready for all this until recently. abi is making slow progress but every little thing she does makes me so proud of her! she has a twin brother, tyler, who looks out for her and will give her a dummy if she cries - it's so cute! 

anyway, i'm looking forward to getting to know you all and sharing stories :) x

I must apologize for being away from this site for so long...someone should have warned me that having 2 kids would be so much more work!!! It's been a few months since I've posted about Anthony's progress.  My little Ant just turned 4!  He's doing great in school and at therapy.  The hospital just hired a new PT (they've been without one for over a year) and she thinks Anthony is ready to start learning how to walk! He is a strong boy and I'm really hoping to see him take his first step in…