PKS KIDS - A Forum For Those Touched By Pallister-Killian Syndrome

A Forum For Those Touched By Pallister-Killian Syndrome

This is a public forum for those impacted by Pallister-Killian Syndrome. Please also visit our non-profit organization's site at www.pkskids.net

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Events

PKS Kids Face2Face 2010

June 24, 2010 at 6pm to June 27, 2010 at 12pm – Mount Laurel Marriot and Coco Key Water Park, NJ

Notes

Family Involvement Fund

This cause has been created to fundraise to bring more families to our conference in June 2010. Donations may be made to the general fund or you may sponsor a specific family with your donation (must be noted on check or paypal). If you need a worthy tax deduction for 2009 or 2010, The Family Involvement Fund for PKS Kids would love your support in bringing more families together to share and educate!

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Created by Gretchen & Simon Nov 17, 2009 at 7:53pm. Last updated by Gretchen & Simon Nov 18.

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Members

Ivy Ashby {Grandmother}

Online
Krystal N Foster

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Videos

conor signing mama!!

Added by elaine and conor :)
P1000721

Added by Krystal N Foster

PKS Kids Montage

Make an on-line slide show at www.OneTrueMedia.com

Photos

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Forum

Welcome to Holland Movie Premiere 7 Replies

Started by Quist Family in Untitled Category. Last reply by Sally-Anne Wilkinson Nov 13.

fundraising 3 Replies

Started by Camilla/Lauren in Untitled Category. Last reply by Kelsey/ cammie Oct 29.

Child Neurology Society conference update 1 Reply

Started by Kate in Untitled Category. Last reply by Gretchen & Simon Oct 18.

Latest Activity

Ivy Ashby {Grandmother} Hi everyone hope everyone is ready for the xmas season.How are all these precious children.

2 minutes ago

Ivy Ashby {Grandmother} added 12 photos

8 more…

5 minutes ago

Krystal N Foster commented on Becky, Scott & Devon Gardner's photo 'Loving the slide!'

love that smile

5 hours ago

Kelsey/ cammie added a blog post

Happy Thanksgiving

From my family to all of your family. Happy Thanksgiving

9 hours ago

Blog Posts

Happy Thanksgiving

From my family to all of your family.

Happy Thanksgiving

Posted by Kelsey/ cammie on November 25, 2009 at 7:41pm

pineal gland tumors/cysts

HI, Hope everyone is well. Haley is 6 just began having seizures. Mri revealed an enlarged pineal gland. Nuero believes it to be from a cyst or tumor. Another mri with contrast has now been ordered. Any one else with similar findings??Please keep us posted. Thanks Camille

Posted by Camille Jung on November 18, 2009 at 5:28pm

pineal gland tumors/cysts

Posted by Camille Jung on November 18, 2009 at 5:28pm — 1 Comment

In desparate need of advice

Francesca is almost 11 months old. She had found her own rythym with sleeping, eating, napping, and even bowel movements around 5 months. Her behavior and needs were so predictable. Then she had a surgery to correct her anterior anus 2 months ago. Since then, life has been a nightmare. Nothing is predictable. She's on a liquid diet only until fully healed, her sleep patterns are way off, and her bowels don't seem to be functioning anymore. The past 3 weeks have been the worst. She goes days with… Continue

Posted by Gita Pinto on November 18, 2009 at 2:08pm — 3 Comments