A public forum for those impacted by Pallister-Killian Syndrome. Please also visit our non-profit organization's site at www.pkskids.com
June 22, 2012 at 5pm to June 24, 2012 at 7pm – Tyson Corners, VA Westin Hotel
16 Comments 4 LikesHi everyone, Please open the attached for details and registration for the conference. A wonderful donor is paying up to $260.00 for your hotel bill, so we hope this helps you make your decision to JOIN US!
Registration%20letter%20form%202012.docx
Any questions, just let…
ContinueCreated by Gretchen & Simon Feb 22, 2012 at 8:52am. Last updated by Gretchen & Simon Feb 22.
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Posted by Christine Granahan on April 27, 2012 at 11:34pm 6 Comments 1 Like
Wow- just looked at Mckenna's pics and I am amazed at how much she has grown! She is still one of the funniest little girls I know. I am so excited to see all her PKS buds in June. She amazed me and her teachers daily! Her dance teacher is truly amazed by her! She remembers the names of the ballet positions and can do most of them (except leaps or skipping!) She now loves tap- but I am afraid she will wipe out in tap shoes. She is a chatter box too- music to my ears- especially " love you…
ContinuePosted by Ivy Ashby {Grandmother} on April 18, 2012 at 10:54pm 0 Comments 0 Likes
Hi Gretchen/Simon
Thanks for that just posted photo's of a painting he did for me When i look at the snapshots i took of the painting one shows me mary and Joseph and the other one if off their dog diesel. what do you think and there is one snap shot from the painting of christ. When he gets sick he comes to me through his painting so i call Julie. Gets quiet frightening but i talk to his painting if i can't get there
Posted by Ivy Ashby {Grandmother} on April 18, 2012 at 7:16pm 0 Comments 0 Likes
th is latest photo of him ih hospital cuddling his best friend. the other was his first painting
Posted by Ivy Ashby {Grandmother} on April 10, 2012 at 7:22pm 8 Comments 0 Likes
Hi everyone Just got a call from Julie Kassius 's mum to say that Kassius is back in hospital again with a bad cough seems like he never quiet got over his last hospitral visit. they say he has got one lung that has partly collapsed so they have to give him more off those horrible antibiotic injections again which he always cry's he also has to have physo to try and remove the stuff that is in his lung so maybe it may reinflate again here's hoping and I pray that he does not give up' I have…
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